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The Sibling Support Project
national |
health / disability issues |
opinion/analysis
Saturday August 06, 2005 18:56 by Miriam Cotton
Supporting siblings of people with disability 'Jason is special to me because he has a disability and is different from other people. Since he’s been born he has not been able to see, hear, walk or talk. I know he is a gifted person because he got communion when he was 18 years old, and he received it on my sister’s birthday. I watch Jason when my mom is doing things around the house. I hold him on my lap and hug him because he is so little. Sometimes I give him his drink after supper. I taught Jason to drink by himself. I don’t like it when he pulls my hair but he doesn’t seem to understand.’ This is a quotation from a personal account by Lizzie Suwala on the Sibling Support Project website and she was 9 years old when she wrote it. Imagine you are a three-year old girl or boy when your disabled sibling is born. Maybe you are a young adolescent with a settled life that is turned upside down by the arrival of your brother or sister. Along with everything else, your childhood has to move over and make space for this situation. While it might be logical to regard the impact on their lives as a negative thing, parents and those who work to support siblings say that, with appropriate understanding and care, there is no necessity for that to be the case. Nevertheless, it takes special consideration to achieve this and however well the circumstances are managed there is an inevitable and significant difference in the lives of siblings of disabled people. |
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Jump To Comment: 1for this very insightful article and telling of Donald Meyers pioneering work.
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